Research information sheets

We produce a number of research information sheets for people living with MND, clinicians and health and social care professionals. All of our publications are checked for accuracy at the time of publishing and are reviewed periodically.

All of our information sheets can be downloaded below, or ordered in a printed format from our helpline MND Connect. You can also send an order using our printable order form. To see our full range of resources and publications, please see the MND information resources page.

A: Introduction to MND research

Information on what happens in motor neurones, possible causes of MND, types of MND research we fund, and ways to find out more about current MND research.

B: Inherited MND and genetic testing

Information on inherited MND and how to find out if you have a gene linked to MND.

C: Unproven treatments in MND

Facts about unproven treatments and some issues to consider before undertaking such treatments.

D: Clinical trials

How and why clinical trials are conducted, and the process involved.

E: Research we fund

Portfolio of the current research projects funded by the MND Association.

F: Stem cells and MND

What are stem cells, how they might be used to create new models of disease, and testing stem cells as a potential treatment.

G: Biomarkers

What are biomarkers, how are they useful and are there any MND biomarkers?

H: Accessing unapproved drugs

The process behind drug approval after a clinical trial, and how a drug not currently licensed to treat MND can be accessed by a patient.

THIS INFORMATION SHEET IS CURRENTLY UNDER REVIEW

I: Tissue donation

How tissue donation may be useful for MND research, what is the process if you wish to donate your brain and spinal cord, and contact details for local tissue banks.

THIS INFORMATION SHEET IS CURRENTLY UNDER REVIEW