Please see the drop-down options below for the publication dates of our resources. This can help you check if you have the most up-to-date copy. Each entry shows:
Title of resource (links to publication when clicked)
Last revision date (month and year)
Next revision date (month and year)
Version number (this shows if any updates have been made since the last revision date)
Guides and introductory information
MND: How to find out more
February 2023
February 2026
1
What you should expect from your care (NICE pocket guide)
September 2024
September 2027
1
Living with MND (Interactive)
October 2022
October 2025
1
Living with MND
October 2022
October 2025
1
Living alone with motor neurone disease and Kennedy's disease
October 2024
October 2027
1
Kennedy's disease
October 2024
October 2027
1
Understanding my needs (Interactive)
May 2024 (ongoing)
3
MND Checklist (Interactive)
March 2024
March 2027
1
An easy read guide to motor neurone disease
November 2020
November 2023
1
An introduction to MND
October 2023
October 2026
2
Caring and MND: quick guide
March 2022
March 2025
2
Caring and MND: support for you
December 2021
December 2024
1
Caring and MND: support for you (Interactive)
December 2021
December 2024
1
When someone close has MND: a workbook for children aged four to ten
Only available as a printed resource - for details see our resources for families, children and carers on our information page.
June 2023
June 2026
1
So what is MND anyway?
December 2021
December 2024
1
Making the most of life with MND
June 2025
June 2028
1
Eating and drinking with motor neurone disease (MND)
June 2024
June 2027
1
End of life: a guide for people with MND
March 2021
March 2024
1
Finding your way with bereavement
April 2022
April 2025
1
Telling people about MND
November 2023
November 2026
1
Emotional and psychological support
June 2020
June 2023
3
Changes to thinking and behaviour with MND
November 2023
November 2026
1
Getting Around
July 2025
July 2028
2
Personal Care
March 2025
March 2028
1
Sex and Relationships
December 2024
December 2027
1
Types of Care
July 2023
July 2026
1
Inherited MND and genetic testing
April 2024
April 2027
1
Information sheets
1A - About the NICE guideline on MND
January 2026
September 2028
1
1B - Health information in other languages and formats
January 2026
February 2028
1
1D - How we use your information
January 2026
August 2027
1
2C – Primary lateral sclerosis
January 2026
May 2026
1
2D - Progressive muscular atrophy
January 2026
March 2027
1
3D - Hospice and palliative care
January 2026
December 2027
1
5A – Riluzole
January 2026
May 2026
1
6A – Physiotherapy
January 2026
April 2026
1
6B – Complementary therapies
January 2026
August 2027
1
6C - Managing pain
January 2026
December 2029
1
7A – Swallowing difficulties
January 2026
May 2026
1
7B – Tube feeding
January 2026
September 2028
1
7C - Speech and communication support
January 2026
February 2026
1
7D - Voice banking and message banking
January 2026
June 2026
1
8A – Support for breathing problems
January 2026
November 2028
1
8B – Ventilation for motor neurone disease
January 2026
September 2029
1
8C - Withdrawal of ventilation with MND
January 2026
November 2028
1
8D - Air travel and ventilation for motor neurone disease
January 2026
November 2028
1
10A – Benefits and entitlements
January 2026
May 2026
1
10B – What is social care?
January 2026
March 2026
1
10C – Disabled Facilities Grants
January 2026
September 2028
1
10D – NHS Continuing Healthcare
December 2022
December 2025
1
10E – Work and motor neurone disease
December 2024
December 2027
1
10F – Personal health budgets
October 2022
October 2025
1
10G - Support for families with children
August 2024
August 2027
1
11C - Equipment and wheelchairs
March 2022
March 2025
1
11E - Environmental controls
March 2022
March 2025
1
14A – Advance Decision to Refuse Treatment (ADRT) and advance care planning
June 2021
June 2024
1
Page last updated: 4 February 2026
Next full review: February 2027