Here you can find more information about the projects we are funding that are improving standards of care. Click on a project to find out more information and what the project means to a person living with MND.
Ensuring that the clinical management of MND is informed by the priorities of people living with the disease and their families, and is supported by a strong evidence base.
Developing a patient decision aid to support genetic testing in MND
Dr Alisdair McNeill
UK MND Clinical Studies Group Co-ordinator
Prof Chris McDermott/ Stacy Young
MND Register for England, Wales and Northern Ireland
Prof Ammar Al-Chalabi and Prof Kevin Talbot
Testing an online peer-to-peer support programme for family caregivers
Prof Louise Rose
Home initiation and monitoring of non-invasive ventilation versus hospital-based care in people with MND
Dr Dariusz Wozniak
iDeliver MND: improving delivery of psychological care in MND
Dr Emily Mayberry
Enhancing care in MND using a personalised care prediction model
Dr Haris Stavroulakis
Standardising carer support across the FTD-MND spectrum
Prof Eneida Mioshi
Addressing knowledge gaps: Understanding and tackling oral health needs for people with MND
Prof Ann-Marie Glenny
Developing resources to support sharing of genetic test results in MND
Dr Alisdair McNeill
Understanding the complexity of living with and managing secretions in MND
Dr Caroline Barry