Here you can find more information about the projects we are funding that are improving standards of care. Click on a project to find out more information and what the project means to a person living with MND.
Ensuring that the clinical management of MND is informed by the priorities of people living with the disease and their families, and is supported by a strong evidence base.
Developing a patient decision aid to support genetic testing in MND
Dr Alisdair McNeill
UK MND Clinical Studies Group Co-ordinator
Prof Chris McDermott/ Stacy Young
MND Register for England, Wales and Northern Ireland
Prof Ammar Al-Chalabi and Prof Kevin Talbot
Testing an online peer-to-peer support programme for family caregivers
Prof Louise Rose
Home initiation and monitoring of non-invasive ventilation versus hospital-based care in people with MND
Dr Dariusz Wozniak
iDeliver MND: improving delivery of psychological care in MND
Dr Emily Mayberry
Enhancing care in MND using a personalised care prediction model
Dr Haris Stavroulakis
Standardising carer support across the FTD-MND spectrum
Prof Eneida Mioshi
Addressing knowledge gaps: Understanding and tackling oral health needs for people with MND
Prof Ann-Marie Glenny
Developing resources to support sharing of genetic test results in MND
Dr Alisdair McNeill
Understanding the complexity of living with and managing secretions in MND
Dr Caroline Barry
Assisted dying in MND: Implications of cognitive and behavioural changes on decision making
Prof Sharon Abrahams