Our aim is to provide people with MND the opportunity to take part in research studies. Below we list research projects that currently recruit participants for their study. These do not always involve testing a treatment (clinical trials). Most are focused on understanding the causes of MND, and improving diagnosis, care and quality of life of people affected by the disease.
To get notified about new research opportunities by email, you may wish to sign up to our MND Research list and newsletter. You can also find the clinical research projects taking place in the UK on the UK MND Clinical Studies Group website.
Treatment Trials
Symptom Management
SETTLE: Investigating how to increase cough strength by improving "cough assist" devices
Recruiting people with MND around London
OptiCALS: A Randomised Controlled Trial to evaluate a nutritional management intervention
Recruiting people with MND and their carers UK-wide
Biomarker Studies
ALS Biomarker Study: Collecting biological samples to search for biomarkers
Recruiting people with MND, healthy controls and neurological controls in London
C9orf72 Cohort Study: Collecting biological samples to search for causes of C9orf72-MND
Recruiting people with MND, family members and healthy controls in Oxford
MIND MAPS ALS: Using neuroimaging to understand the mechanisms of ALS
Recruiting people with MND in London
Improving wellbeing
TONiC: Examining the factors influencing qualify of life in neurological conditions
Recruiting people with MND UK-wide
Understanding the impact of a virtual peer support programme on wellbeing and caregiver burden
Recruiting peer supporters and carers UK-wide
Investigating the use of music in families with children with a parent receiving palliative care
People with MND who have received palliative care and have a child under the age of 18 in the UK
Investigating the different aspects of emotional distress which people with MND may experience
Recruiting people with MND and informal carers UK-wide
Investigating the use of video calls by palliative care organisations to provide emotional support
Recruiting people with MND, family members/carers and healthcare professionals in England
Understanding how people with MND and carers feel about tests on thinking ability and behaviour in MND
Recruiting people with MND, family members and informal carers UK-wide
Interviewing partners of people with MND about their experiences with co-parenting and support needs
Recruiting bereaved partners, family members/ carers of someone with MND who co-parented a minor during this time, UK-wide
Other Studies
MND Register: Collecting information about every person living with MND in England, Wales and Northern Ireland
Recruiting people with MND in England, Wales and Northern Ireland
Developing a stimulation-free remote motor unit number estimate (REMUNE) in MND
Recruiting people with MND, their carers and family members in London
Investigating the role of exercise in modifying neurodegeneration related to MND
Recruiting people with a C9orf72 gene mutation
Sheffield MND Research Advisory Group
Recruiting people with MND, their carers and family members