On this page, you will find the latest updates on our work for health and social care professionals.
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Newly revised information sheet: NHS Continuing Healthcare for MND
12 March 2026
We are delighted to share our updated information sheet, NHS Continuing Healthcare for MND!
This publication is designed to help health and social care professionals understand MND in the context of the NHS Continuing Healthcare (CHC) care domains. It explains how the condition may affect each domain within the CHC Checklist and Decision Support Tool, and highlights key considerations when gathering evidence and supporting people with MND through the CHC process.
The aim is to help recognise when someone with MND meets the threshold for CHC and to ensure that the complexity and progression of the disease are clearly reflected during assessment, so that people who are eligible can access this vital support.
If you have any questions or feedback on our resources, or would like to help us review information for professionals, please email us at infofeedback@mndassociation.org.
View our Publications for Professionals
New look, same vision: a world free from MND
28 January 2026
We have a new look, new values and a bolder approach to help drive us faster towards our vision of a world free from MND. To reach our goals – finding life-changing treatments through research, giving everyone with MND choice and control, and influencing positive change – we need a brand that matches our ambition. And now we have it.
We’re introducing the new brand in phases, so some information resources may appear in the new design while others remain in the existing style. Resources in the previous style are not necessarily out of date. To check you’re using the most up-to-date resources, please visit our publications webpages below.
View our Publications for Professionals
Our 2026 Calendar of Events is now live!
4 December 2025
We have now officially launched our education calendar for 2026 events!
All our events are delivered by subject experts and designed to support your professional development with specialist knowledge and practical skills. The programme covers a wide range of topics relevant to the care of people with or affected by MND, and features both online and in-person events.
View our 2026 Calendar of Events
New resources for health and social care professionals: Saliva management pathway
1 October 2025
We are delighted to share our new Saliva management pathway!
This resource aims to help professionals provide care tailored to each person's needs, offering practical guidance for addressing common saliva issues in MND, including watery saliva, thick tenacious secretions, and dry mouth.
The pathways, developed with the Expert Core of the MND Professionals’ Community of Practice, brings together clinical practice and best practice and it covers suggested assessment tools, as well as both non-drug and medication-based treatments.
If you have any questions or feedback on our resources, or would like to help us review information for professionals, please email us at infofeedback@mndassociation.org.
View our Publications for Professionals
New online course on Acceptance and Commitment Therapy
3 September 2025
We are excited to open the registrations for our brand new, online course on Using Acceptance and Commitment Therapy (ACT) to support people with MND.
ACT is a form of psychological therapy that has been shown to improve the quality of life in people with MND. During this course, you'll learn how to provide ACT to people with this condition through self-paced modules, live sessions with Professor Rebecca Gould (UCL), and peer discussions.
The nine-week course will run twice a year, the first date being 29 September. It is free to attend and open to all registered psychologists.
Find out more about our online courses
Newly revised guide for care workers
1 August 2025
We are delighted to share our newly revised booklet Caring for a person with MND: a guide for care workers!
We’ve worked with professionals, including care agency staff, to develop a practical toolkit for those caring for people living with MND. The toolkit covers topics such as handling emergencies, communicating, assisting with personal care, and safeguarding.
If you have any questions or feedback on our resources, or would like to help us review information for professionals, please email us at infofeedback@mndassociation.org.
View our Publications for Professionals
Revised resources on swallowing difficulties
2 July 2025
We have published our newly revised resources to help health and social care professionals manage swallowing difficulties in people living with MND.
Our Dysphagia in MND information sheet and Dietetics and Nutrition infographic are based on national recommendations and provide practical guidance, including for making timely referrals, preventing malnutrition, and supporting informed decisions about gastrostomy and eating with acknowledged risks.
If you have any questions or feedback on our resources, or would like to help us review information for professionals, please email us at infofeedback@mndassociation.org.
View our Publications for Professionals
Registrations open for the Community of Practice Annual Networking Event
13 May 2025
Members of our MND Professionals' Community of Practice can now register to attend our 2025 Annual Networking Event, which will take place on Tuesday 7 October at the National Conference Centre in Solihull, Birmingham.
The event is a unique opportunity to connect with professionals from all over the country and actively learn with and from them about key issues in MND care. This year's theme is Supporting choice and control for people living with and affected by MND.
The day will be filled with inspiring activities, including meeting with exhibitors and joining hands-on demonstrations of equipment, including PEG insertion and orthotics. Attendants will have the opportunity to choose between several workshop-style sessions, where subject experts will help them explore issues such as genetic testing, assisted dying and treatment refusal.
Learn more about the event and book your place
Become a member of the Community of Practice
New infographic on psychological and social care support
30 April 2025
We are thrilled to announce the launch of a new infographic on Psychological and social care support in MND. This resource is designed to assist health and social care professionals in delivering essential mental health and social care to people living with and affected by this condition.
Our new infographic is part of our ongoing commitment to develop new resources that help professionals address emerging urgent issues in MND care. It offers an accessible, practical summary of NICE guidelines, promoting best practice and helping meet national recommendations.
If you have any questions or feedback on our resources or would like to help us review information for professionals, please email us at infofeedback@mndassociation.org.
See our resources for professionals