Interviewing people with MND, caregivers and healthcare professionals to learn about their views and concerns with computer aided communication technology.
The purpose of this survey is to understand the opinions, perspectives, and concerns regarding the use of Artificial Intelligence (AI) in Augmentative and Alternative Communication (AAC) systems. This survey aims to gather insights from individuals who rely on AAC, their communication partners, caregivers, and clinical staff. This research seeks to gain a deeper understanding of the potential benefits, challenges, and ethical considerations associated with integrating AI into AAC systems, with the ultimate goal of insuring that the opinion of people with ALS/MND who rely on AAC is incorporated into the design of AAC systems.
Taking Part
What does taking part involve?
Participants are asked to participate in a one-time, anonymous online survey expected to take approximately 15-20 minutes to complete.
The study hopes to represent the opinions and perspectives of people who rely on Augmentative and Alternative Communication systems and their
communication with partners and care givers to help inform and direct updates of current augmentative communication technology and the development of future communication technologies.
Who can take part?
- People with MND
- Partners, family members and informal carers of someone with MND
- Clinicians and healthcare professionals supporting people with MND
How can I take part?
The study can be taken online here.
An introductory video explaining the potential impact of A.I. to enhance the speed and ease of communication with AAC can be found here or can be read in text here.
For additional information regarding this study, please contact John M. Costello at [email protected]
This survey is being conducted by John M. Costello and Ralf Schlosser at Jay S. Fishman ALS Augmentative Communication Program at Boston Children’s Hospital.
Please note: The survey is available in English only
Study location
Online
Funding
Not Funded