Ed Cooke is a lawyer who is living with MND. Following his diagnosis, Ed found the MND Association to be an essential source of information and support, so he wanted to give back to the charity. Ed says: “This gives me a real opportunity to make a difference to the lives of those afflicted by this disease both now and in the future.
“Living with MND, I’ve direct experience of the frustrating diagnostic process, shock of receiving the news, uncertainty of how and when the symptoms will develop, fear of the future and mixed feelings of regret and determination.
“Each person’s journey following diagnosis is distinct. I believe it would be advantageous for the Association to have more trustees who are living with the condition, as they can offer invaluable first-hand insights. Coupling these experiences with those of existing trustees, many of whom have backgrounds in caregiving or possess medical expertise, will undoubtedly benefit the Association.”