Latest News
News
Royal Patron HRH The Princess Royal attends MND Association’s Northern Ireland Conference
12 April 2024
The team were delighted to welcome Royal Patron HRH The Princess Royal to the Northern Ireland Conference.
News
New researcher joins MND Pre-Fellowship scheme with project focused on biomarkers
11 April 2024
A new research project has launched as part of the Pre-Fellowship scheme to fund MND research leaders of the future.
Research
MND charities update on MIROCALS
4 April 2024
The MND Association understand the continued frustration within the MND community that we are still awaiting publication of data from the MIROCALS trial.
News
MND charities respond to TUDCA trial results
27 March 2024
We are disappointed that the European TUDCA-ALS phase 3 clinical trial of TUDCA did not meet its primary aim
Association News
New support group starts in the Rugby area
27 March 2024
A new support group for people with motor neurone disease starts in the Rugby area
News
MND Association acts on tofersen decision
21 March 2024
Tofersen is a proven, effective treatment. Clinical trials have shown it slows progression of MND in people who have the SOD1 gene alteration.
News
New research partnership to support the search for MND treatments
19 March 2024
Researchers at the University of Nottingham are joining forces with Stand Against MND, the charity co-founded by Sam Perkins who has MND, and the MND Association, to carry out research
News
Statement in response to NICE decision regarding tofersen
13 March 2024
Last week we heard the disappointing news that NICE has confirmed its decision to appraise the drug tofersen through the Single Technology Appraisal (STA) route
News
Spring budget 2024 response
6 March 2024
The Association responds to the 2024 spring budget announcement.