Michael Hope, along with his family, watched his uncle’s progression with MND until he died aged 83. This experience, combined with his own lengthy journey to get a confirmed diagnosis of MND, motivated him to be a trustee.
Michael said: “I watched my uncle progress with MND, becoming physically locked in, whilst his mind remained sharp until he was 83. For me, it took over eight years to receive a correct diagnosis. During those years I was sent on numerous specialist pathways. This gives me an understanding of the journeys people travel, either alone or
with their families.
“I understand the difficulties for people living with MND and their carers. I’ve seen courage, bravery and perseverance which inspires me to stand to be of service to represent and speak for people affected by MND.”