At the MND Association we run almost 150 different support groups across England, Wales and Northern Ireland on a regular basis. The majority are run as face-to-face groups with the remainder taking place online. 

Some online support groups are aimed at individuals in specific local areas, for example in a local Branch or Group area. For details of online support groups in your local area use the search tool to visit your local Branch or Group page.

The online support groups listed below are open to individuals in wider geographical areas as indicated by the headers. Contact details are provided for each group, if you have any questions please get in touch with the named contact. 

List of online support groups

Open across England, Wales and Northern Ireland

Online group for carers (evening) 

A virtual cuppa and friendly chat with other carers of people living with MND 

Takes place on the last Wednesday of the month from 6.30-7.30pm

For more information contact Abigail Igbokwe or Charlotte Stanford-Gibbs

 

Veterans support group (pilot) 

For military veterans who are living with MND. An opportunity to share your experiences and common interests

Takes place on fourth Wednesday of the month from 2.30-3.30pm 

For more information contact Dawn Pond or Grace Kay

 

PMA-PLS support group

For people living with Progressive Muscular Atrophy (PMA) and PLS (Primary Lateral Sclerosis) both of which are less common forms of MND

Takes place on the second Monday of the month from 5pm-6pm 

For more information contact MND Connect

 

Tracheostomy support group 

For carers of people living with MND who have had a tracheostomy. A peer-to-peer support group offering an opportunity to share ideas and experiences

Timing alternates between evening and day time

For more information and upcoming dates contact Alli Anthony or Lisa Burnard

 

Toferson treatment support group

For people living with MND who have the SOD1 gene and are on the Tofersen treatment. A peer-to-peer support group offering an opportunity to share ideas and experiences.


We meet at 2pm via Zoom on a day that suits as many of the group as we can.


For more information and upcoming dates contact Alli Anthony
 

 

Open across England

Let's Talk Continuing Healthcare (CHC)

A peer support group for people living with and affected by MND, Association volunteers and Health and Social Care Professionals wanting to understand more about CHC funding processes or are facing problems with an existing care package. 

Takes place every six weeks on Mondays from 11am

For upcoming dates and further information contact Anne Anderson

Open across the Devolved Nations (Northern Ireland, Wales and Isle of Man)

Cuppa and Chat (Northern Ireland) 

An informal online gathering for people living with and affected by MND in Northern Ireland

For upcoming dates and further information contact Louise Hughes

 

All Wales Virtual Support Group

For people living with and affected by MND in Wales

Dates TBC

For further information contact Carol Smith, Jo Cunnah or Sarah Lowther 

 

All Wales Past Carers Group

For bereaved carers of loved ones with MND in Wales

Dates TBC

For further information contact Sarah Lowther, Jo Cunnah or Carol Smith

Open across the South East region (England)

These groups are open to individuals living in the following geographical areas:

 

  • Hampshire, Isle of Wight and Jersey
  • East and West Sussex
  • Kent
  • South, East and North London
  • Surrey and South West London
  • Hertfordshire and Essex
  • East Anglia

 

Recently Diagnosed Group

Open discussion for people recently diagnosed with MND and their loved ones

Takes place on the third Friday of the month from 2.00-3.00pm 

For more information contact Lisa Burnard 

 

Peer to peer support group 

Open discussion for people living with and affected by MND

Takes place on the third Tuesday of the month from 11.00am-12.30pm

For upcoming dates and more information contact Dawn Pond or Liz Cooper

 

Online group for carers (daytime)

A virtual cuppa and friendly chat with other carers of people living with MND

Takes place on the first Tuesday of the month from 11am-Noon

For more information contact Lisa Burnard 

 

Open across the Central and West region (England).

These groups are open to individuals living in the following geographical areas:

  • Devon and Cornwall
  • Somerset and Dorset
  • Bristol and West (including Gloucestershire and Wiltshire)
  • West Midlands South
  • West Midlands North
  • Thames Valley
  • Central Midlands
  • East Midlands

Recently Diagnosed Group (pilot)

An informal online peer-to-peer support group lead by staff members, this is open to anyone in the region diagnosed with MND within the last 12 months. Running as a pilot for the remainder of 2024, the group will be shaped by attendees as a space to ask questions, share experiences and receive support. Dates for the pilot are as follows: 

Monday 9th September 2-3pm

Monday 14th October 2-3pm 

Monday 11th November 2-3pm

To register your interest or for more details including the Zoom link please contact Andy Graham or Marianne Grant