Brain Computer Interfaces Patient Preference Survey

A survey to better understand the needs of people living with MND when developing an Implantable Brain-Computer Interface device. 
 

A Brain Computer Interface (BCI) is a new type of medical device that can be implanted beneath the skull, where it records brain activity with the aim of supporting communication and controlling devices in the real world, such as computers, robotic prosthetic limbs, or wheelchairs. For individuals with paralysis resulting from MND, a BCI may potentially, in the future, restore some degree of functional autonomy.

This online survey, conducted by UCL, is the first that aims to better understand the preferences and needs of people living with MND in the UK regarding BCI devices. No identifiable data will be collected.

As BCI devices are currently being designed and developed, it is critical to have input from people living with MND. The researchers would like to understand which functions are needed most, how much training time could be tolerated, what level of performance is sufficient, and what level of risk would be acceptable.  

The results of this survey will inform the design of BCI devices, supporting better alignment with the preferences and needs of people living with MND.