Parenting through MND

Interviewing partners of people with MND about their experiences with co-parenting and support needs

The research aims to understand parent-child communication about MND and family support needs. Based on a literature review and stakeholder feedback, enhancing parents' capacity to provide both immediate and long-term support to their children requires a deeper understanding of the challenges faced by caretaking partners of people with Motor Neuron Disease (MND) in their parental roles. This includes defining the existing strategies and support systems available to them, exploring their perspectives and emotional responses towards this support and identifying their preferences for ideal supportive measures. The research aims to address this gap by investigating the specific needs, experiences, and preferences of caretaking partners of people with Motor Neuron Disease (MND). The researchers hope that these findings will aid the development of tailored intervention and support programs to enhance caretaking partners' capacity to provide effective and sustained support towards their children.