If you have been diagnosed with MND, this guide provides an overview of the disease and ways to achieve the best possible quality of life from diagnosis onwards.
This guide was highly commended and shortlisted for Patient Information Resource of the Year 2014, by the British Medical Association at the BMA Awards. It has been regularly updated with expert guidance, including contributions from people living with or affected by MND.
See below for the full version of the guide or separate sections.
You can also order the guide in printed format from our helpline, MND Connect.
Living with motor neurone disease (interactive)
An interactive online version of the guide. This allows you to click on the content headings or the index page numbers to quickly access the subject matter you want.
Living with motor neurone disease
A standard online version of the guide, without the interactive content page and index.
Section 1: Motor neurone disease (MND)
This section provides basic facts about MND and the diagnosis.
Section 2: Symptoms and management
This section provides information on the likely symptoms of MND and how these can be managed.
Section 3: What do I need to think about?
This section provides a checklist of the top 15 tips to help you maintain the best possible quality of life with MND.
Section 4: Emotional impact
This section enables you to identify and manage some of the more difficult emotional responses following diagnosis.
Section 5: Family, children and friends
This section provides guidance on how to manage difficult conversations with those close to you, as you adjust to the diagnosis of MND.
Section 6: Getting around
This section provides information on how to maintain movement and mobility in your everyday life to prolong independence and support social contact.
Section 7: Everyday activities and personal care
This section provides guidance on how to prolong independence with everyday activities and personal care.
Section 8: Speech and communication
This section provides information on how MND may affect your ability to communicate and what can be done to help.
Section 9: Eating and drinking
This section provides guidance on ways to adjust to any problems with eating and drinking.
Section 10: Finance, work and social care
This section provides information to help you identify options relating to financial support, entitlements and employment, following diagnosis with MND.
Section 11: Planning ahead
This section is extracted from the Living with motor neurone disease guide. It provides information on how to plan ahead for the later stages of MND.
Accessing services and support
The sections in this extract from the Living with motor neurone disease guide enable you to identify available services and support, with guidance on how to access them.
Helping you to keep track
These write-on pages have been extracted from the Living with motor neurone disease guide. You can print them if you need extra pages to make notes.
Page last updated: 11 March 2025
Next full review: February 2027