MND Care Centre Sheffield
Many people within the South Yorkshire area living with MND will have been diagnosed at the Hallamshire hospital and will most likely attend a clinic at the Sheffield MND Centre.
The Neurologists here are:
Professor Dame Pamela Shaw, Professor Chris McDermott, Dr Esther Hobson
Phone: 0114 226 1049
Dr Channa Hewamadduma
Phone: 0114 271 3708
The nurses in the MND Specialist Nursing Service are Tara Bradford, Jo Brookes and Jenny Booth. They run nurse led clinics at the Hallamshire hospital and offer appointments within 4 weeks of your initial MND diagnosis.
The centre has its own website - Sheffield MND Centre
Other Sheffield Services:
There is a Neurology Outreach Therapy Service NOTS, Phone: 0114 271 3730.
This service does not have a speech and language therapist, so if speech or swallowing issues are present at diagnosis it is likely that the NES therapy services will be involved.
Neuro Enablement service NES: Occupational Therapy, Physiotherapy Psychology and Speech and Language Therapy plus Specialist assistant in assistive technology (see below) Phone: 0114 271 1237
Referral to this service is usually made by the clinic team or health professionals but can be made by family members or someone living with MND. It is a service for people registered with a Sheffield GP.
If you are under a Sheffield GP and you are considering a feeding tube(gastrostomy) you should ask for a referral to the Sheffield Home Enteral Feed Service. The dieticians in this service will help you with your decision, and explain everything about gastronomy. Your neurologist, specialist nurse or speech and language therapist will make the referral for you.
Case Management Service: 0114 271 6950
Cavendish Care Centre complementary therapies and support (see below): 0114 278 4600
St Luke's Hospice 0114 236 9911
Wheelchair Service 0114 243 4343
Assistive Technology - Nicola Hayton works with the Barnsley Assistive Technology Team who is a nationally recognised service. They aim to improve the independence of individuals living with disabilities through the provision of electronic assistive technologies. Sheffield Referral Point Unit: LTNC Building, Michael Carlisle Centre, 75 Osborne Rd, Sheffield S11 9BF
Contact: 0114 271 1237 or [email protected]
Rotherham Services:
Neuro Community Matrons - 01709 423722
Rotherham Hospice - 01709 308900
Doncaster Services:
Neurology Rehab Outreach Team NROT - 01302 796409
St John's Hospice - 01302 796677
Wheelchair Services - 01302 566701
Aurora Centre see below - 01302 644662
Barnsley Services:
Therapy Team
Occupational Therapy & Physiotherapy - 0122 664 4559
Speech & Language Therapy - 0122 643 2159
Wheelchair Services - 0114 243 4343
Barnsley Hospice - 0122 624 4244
Assistive Technology - 0122 643 2159
Complementary therapy and emotional support for people affected by MND
Provision at the Cavendish Care Centre Sheffield and Aurora Centre Doncaster
"I hesitated before I visited the Cavendish... but everyone was so warm and friendly, before we knew it we were sitting down with a cup of tea."
The Cavendish Centre is a long established charitable organisation in Sheffield that has been offering free supportive care to people living with cancer, for many years. The South Yorkshire Branch of the MND Association works in partnership with Cavendish Cancer Care. The aim is to offer this same form of supportive care, including complementary therapies, to patients with MND, their main carer and children if appropriate.
At one of our Sheffield Open meetings a few years ago, a therapist from the Cavendish came along to demonstrate some of the services:
Delphine explained that the centre provided a non- clinical atmosphere for families affected by MND to come and talk in confidence about their worries and fears. She explained that often patients and carers protect each other and so may not be able to talk honestly about their feelings to each other.
The centre encourages self referral and the service is flexible so people may attend at any stage of the disease. Though the sessions are time limited, they can also be extended if necessary.
As well as counselling she explained about therapies such as reflexology, acupuncture, hypnotherapy and relaxation. Any of these can help with things like anxiety, decision making and sleep problems.
"Different weeks it's about different things" she said "The worse I feel the more I need it". Julie also said she felt it "realigned her body".
Julie was a regular client of the Cavendish and found shiatsu invaluable.
The sessions are generally carried out at the centre in Wilkinson Street but if you live within a ten mile radius of the Cavendish, the therapists can often offer a service in your own home. Many people have found them a real benefit in the past, whether they've just had a hand or foot massage or the chance to talk to a professional and relax in a pleasant, calming one to one situation.
Contact: Ann Quinn
Email: [email protected]
Phone: 07776 191333
What are complementary therapies and can I get help with complementary therapies at other locations?
People have found that complementary therapies have been useful in helping to support them during periods of poor health. Complementary Therapies aim to address symptoms of illness and disease and their effects on the physical and emotional aspects of life, through the complete and balanced treatment of the person as a whole. Some of the complementary therapies involve hands on treatments such as aromatherapy massage and some involve talking, listening and counselling.
For people with motor neurone disease these therapies are sometimes offered at a day hospice but the South Yorkshire branch also helps to fund individual courses of complementary therapy for families affected by MND. Contact Marlene Bryan. Details above.
How can I access Complementary Therapies at the Cavendish?
If you, or the person caring for you, wish to receive support and complementary therapy services from the staff at the Cavendish Care Centre or would like further information, please contact them directly and they will discuss all options fully with you. You do not need to be referred.
The service runs Monday to Friday Tel: 0114 278 4600
What happens when my treatments finish?
Ann Quinn, Branch Contact, would very much welcome your feedback on complementary therapies generally, and is happy to help co ordinate a further session of treatments if required.
Contact: Ann Quinn - [email protected]
Aurora Centre
With services similar to the Cavendish, Aurora wellbeing centres support families affected by MND and offer access to their wellbeing programmes for people living with MND and their main carer. These can be accessed at Doncaster Hospital.
Contact: Lynne Rothwell - 07889 988037.
Lynne can also tell you about the Emotional Support Service which can be offered at your home if you live in Doncaster or Mexborough.
Contact: Ann Quinn - [email protected] for more information.
SITraN
The Sheffield Institute for Translational Neuroscience (SITraN) is a world-renowned research facility opposite the Hallamshire Hospital in Sheffield. It brings together scientists and medical specialists from around the globe who are dedicated to finding the causes and treatments for MND, as well as other neurodegenerative conditions such as Parkinson's and Alzheimer's disease.
The key aim of their research is to identify what leads to the degeneration of neurones at the root of MND. The research teams focus on experimental work in the laboratory, which could then be translated into effective therapies for patients in the clinic. Each December doctors and scientists from SITraN attend the International Symposium on MND organised by the MND Association.
For more information on research at SITraN please visit: www.sheffield.ac.uk/sitran
The Sheffield Motor Neurone Disorders Research Advisory Group. SMND RAG
The Sheffield Motor Neurone Disorders Research Advisory Group SMND RAG was established in 2009 to bring together patients and carers from the local area who wish to help researchers understand patient & carer priorities in research.
The group has face-to-face meetings at SITraN four times a year, in addition to monthly email updates. Associate members of SMND RAG do not need to attend face-to-face meetings.
Sheffield Motor Neurone Disorders Research Advisory Group
It aims :
- To enable the patient and carers perspectives to be heard, which might otherwise be overlooked
- To provide knowledge for the researchers from the individual's experience and contribution
- To identify and prioritise research topics that are important to patients
- To improve recruitment to research studies
- To comment on the study Patient Information Sheets
- To help write lay summaries for research proposals and Research Ethics Committees
If you are interested in becoming a member of SMND RAG and require further information please contact:
Annette Taylor
Phone: 0114 222 2289
Email: [email protected]