There are now quite a few support Groups in the area, mostly on-line, for those living with MND and their carers. They are held both during the day and in the evening, often monthly. They offer the chance to share thoughts, have a friendly chat and seek support. The Contact listed is happy to answer any questions, so please do get in touch.
- South London Meet Ups - Led by Sally Roberts (Volunteer)
A friendly laid-back space to meet others living and affected by MND. Takes place on Sundays, every 2 months, from 2-4 pm online and in person:
Meeting Dates for 2025: 14 Dec (St. Christopher's Hospice, Sydenham, SE26 6DZ).
Contact: For more information, contact Sally Roberts.
- Recently Diagnosed Support Group - Led by Lisa Burnard (ASC)
Open discussion for people recently diagnosed with MND and their loved ones. Takes place online on the third Friday of the month from 2-3pm.
Meeting Dates for 2025: 21 Nov, 19 Dec.
Contact: For more information, contact Lisa Burnard.
- Online group for carers (am) - Led by Lisa Burnard (ASC)
A virtual cuppa and friendly chat with other carers of people with MND. Join us on the first Tuesday of each month at 11am.
Meeting Dates for 2025: 4 Nov, 2 Dec.
Contact: For more information, contact Lisa Burnard or Kathryn Parkin.
- Evening monthly carers Group - Led by Charlotte Standford-Gibbs and Abigail Igbokwe (ASC)
A virtual cuppa and friendly chat with other carers of people living with MND. Takes place on the last Wednesday of the month from 6.30pm.
Meeting Dates for 2025: 26 Nov.
Contact: For more information, contact Charlotte Stanford-Gibbs and Abigail Igbokwe.
- Facing MND Together -
A friendly and supportive online group for people living with and affected by MND. Takes place on the first Wednesday of the month from 11am-Noon.
Contact: For more information contact Abigail Igbokwe.
- Tea, coffee & a catch up peer to peer support group -
Tea, coffee & a catch up peer to peer support group. An informal online peer-to-peer support group offering an opportunity to share ideas and meet others living with and affected by MND. Takes place on the third Tuesday of the month from 11.00am-12.30pm.
Meeting Dates for 2025: 18 Nov, 16 Dec.
Contact: For more information, contact Liz Cooper.
- Working with MND Peer Support Group -
For people living with MND who continue to work, to come together to share experiences in a relaxed, safe and supportive way.
Contact: For more information, contact Jo Cunnah (Community Support Coordinator).
There are also specific groups for those with PMA-PLS, those having tracheostomies, those who are service veterans, and other specialist groups. Check out the full list here:
The listed Contacts are always happy to answer any questions, so do get in touch.