The following are a range of support groups that regularly meet online or in person to provide information, help and support. Here are the groups available in this area and when they meet. The Contact is happy to answer any questions, so do get in touch.
- South London Meet Ups - Led by Sally Roberts (Volunteer)
A friendly laid-back space to meet others living and affected by MND. This group meets in person as well as on zoom. We meet on Sundays, every two months, from 2-4pm.
Meeting Dates for 2025: 9 Feb, 8 June, 19 Oct (Royal Trinity Hospice, Clapham, SW4 0RN). 13 Apr, 10 Aug, 14 Dec (St. Christopher's Hospice, Sydenham, SE26 6DZ).
Contact: If you have any questions, contact Sally Roberts
- South London Carers Support Group - Led by Evelyn and Patrick (Volunteer)
Offering support for Carers in South London. We meet on weekdays, on alternating months in 2025.
Meeting Dates for 2025: TBC
Contact: If you have any questions, contact Evelyn Hayward and Abigail Igbokwe
- Recently Diagnosed Support Group - Led by Lisa Burnard (ASC)
If you or a loved one has recently been diagnosed with MND you are welcome to join this friendly group. Meet others in the same position, ask questions and find out about available support. It meets on the third Friday of the month at 2pm.
Meeting Dates for 2025: 21 Feb, 21 March, 16 May, 20 June, 18 July, 15 Aug, 19 Sept, 17 Oct, 21 Nov, 19 Dec.
Contact: If you have any questions, contact Lisa Burnard
- The Daytime Carers Group - Led by Lisa Burnard (ASC)
A virtual cuppa and friendly chat with other carers of people with MND in the Southeast. Join us on the first Tuesday of each month at 11am.
Meeting Dates for 2025: 4 Feb, 4 March, 1 April, 6 May, 3 June, 1 July, 5 Aug, 2 Sept, 7 Oct, 4 Nov, 2 Dec.
Contact: If you have any questions, contact Lisa Burnard
- The Evening Online Carers Group - Led by Charlotte Standford-Gibbs and Abigail Igbokwe (ASC)
Meeting on the last Wednesday of the month at 6:30pm. It’s very popular with carers who find it hard to meet up during the day.
Meeting Dates for 2025: 26 Feb, 26 March, 30 April, 28 May, 25 June, 30 July, 27 Aug, 24 Sept, 29 Oct, 26 Nov.
Contact: If you have any questions, contact Charlotte Stanford-Gibbs and Abigail Igbokwe
- London Support Group - Led by Abigail Igbokwe (ASC)
A friendly and supportive chat with others living with MND and their carers. We meet on the first Wednesday of each month at 11am.
Meeting Dates for 2025: 5 Feb, 5 March, 2 April, 7 May, 4 June, 2 July, 6 Aug, 3 Sept, 1 Oct, 5 Nov, 3 Dec.
Contact: If you have any questions, contact Charlotte Stanford-Gibbs and Abigail Igbokwe
- PMA-PLS Support Group
For those living with or affected by Progressive Muscular Atrophy (PMA) or Primary Lateral Sclerosis (PLS). This group helps you link up with other people living with or affected by PLS or PMA. It meets on the second Monday of each month from 5pm - 6pm.
Meeting Dates for 2025: TBC
Contact: If you have any questions, contact MND Connect
- MND Veterans Group
Enables MND veterans to support each other, sharing their experiences and common interests. Meets on the fourth Wednesday of the month from 2.30pm - 3.30pm.
Meeting Dates for 2025: TBC
Contact: If you have any questions, contact Grace Kay
- CHC Peer Support Group - Led by Anne Anderson, CHC Peer Support volunteer
To better understand how to obtain Continuing Health Care (CHC) funding or to resolve problems with an existing package. Meets every 6 weeks at 11am.
Meeting Dates for 2025: 3 March, 14 April.
Contact: If you have any questions, contact CHC
- South East Region Peer to Peer Support Group
Offers the opportunity to meet others with MND across the region. On the third Tuesday of the month from 11.00am -12.30pm.
Meeting Dates for 2025: 18 Feb, 18 Mar, 15 Apr, 20 May, 17 Jun, 15 Jul, 19 Aug, 16 Sep, 21 Oct, 18, Nov, 16 Dec.
Contact: If you have any questions, contact Liz Cooper