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Tofersen update
On Friday 30 January, we shared an update about the situation around access to life-saving drug tofersen for people with SOD1 MND in the Southampton area
- Support and information
Personal care
As MND progresses, you may need help with personal care, such as support to get washed and dressed. See the options below for guidance. This information may…
- Support and information
Mobility and movement
MND symptoms progress over time and can affect mobility and movement.
- Support and information
Planning ahead
Planning ahead with MND can be emotionally challenging. As MND is a life-shortening disease, discussions about the future include thinking about end of life…
- Support and information
Treatments and medication
Being informed about MND treatments and medication, as early as possible, can help you make timely decisions that feel right for you.
- Support and information
Breathing and ventilation
If you begin to feel breathless with MND or have trouble sleeping, there is breathing and ventilation support available.
Identifying causes of neuron cell death in C9orf72 MND
Find out more about research we fund: Identifying causes of neuron cell death in C9orf72 MND
- Research
Using advanced MRI techniques to identify biomarkers for MND
Find out more about research we fund: Using advanced MRI techniques to identify biomarkers for MND
- Research
Investigating the effect of C9orf72 gene changes on metabolism in MND
Find out more about research we fund: Investigating the effect of C9orf72 gene changes on metabolism in MND.
- Professionals
- Support and information
MND Connect Helpline
The MND Connect team offers information and support on all aspects of motor neurone disease (MND), including symptom control, practical management, improving…