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September appeal aims to fund research to shorten time it takes to be diagnosed with MND
Debbie Whitehouse, who is living with MND, fronts appeal by sharing the story of her own diagnosis
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Wales man with MND shares tofersen journey with Government panel
Mike Thomas, 61, spoke at the UK Neuro Forum on 10 September
  • Campaigning
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CognoMND™: A digital tool to identify changes in thinking and behaviour
Take part in a research study to test CognoMND, a digital tool to identify changes in thinking and behaviour.
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ChiMND: Complex Homecare in MND
Take part in a research study to explore the role of homecare workers in supporting people with MND who have complex care needs
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ALS biomarker study
Find out about how collecting biological samples will help the search for biomarkers.
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Motor Neurone Disease Research Data Catalyst
Help to plan a programme to improve researchers’ access to MND research data
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DENIM trial: Delivering Effective Non-Invasive Ventilation in Motor Neuron Disease
Take part in a trial to improve delivery of non-invasive ventilation (NIV).
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ACORN: A C9orf72 National Study
This study aims to better understand C9orf72 related MND and FTD.
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TiM-R: a remote platform for MND research
Take part in a research survey to better understand the lived experiences of people with MND and communication aids.
  • Research
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TONiC: quality of life in neurological conditions
TONiC (Trajectories of Outcome in Neurological Conditions) is the largest study in the UK examining the factors that influence quality of life in patients with…
  • Research
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