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Why we’re campaigning on tofersen again

Tofersen is a new treatment that is effective for the roughly 2% of people with MND who have a particular genetic change.

New survey suggests nearly half of carers have a mental or physical condition due to caring

From 9th June until 16th, each day of Carers Week will have a different focus.

Our response to the Government's Spending Review

In the run up to today’s (11 June) Spending Review, the Association wrote to to Chancellor of the Exchequer Rachel Reeves.

MND Association calls for greater awareness as two thirds know little or nothing about motor neurone disease

Hidden Realities campaign is launched to educate the public about MND

Councils: Unlock the Door

Local authorities must improve the application process for grants towards housing adaptations

Help us change the future of adult social care

Our views have been submitted to the independent Casey Commission, which will report to the Prime Minister in 2028

Making every day matter.

We unveil our new look and new approach, shaped by our community, to drive us faster to a world free from Motor Neurone Disease (MND).

MND Connect helpline awarded accreditation

Our helpline has been recognised by the Helplines Standards, which defines and certifies best practice.

Unlock The Door campaign sees councils adopt MND fast-track motion

DFGs help people living with a disability to adapt their homes to be safe, suitable and accessible.

Royal reveal of our new look.

The MND Association’s Royal Patron, HRH The Princess Royal attends special event with the MND community to launch our brand.