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Political Snapshot - April to June 2025

A snapshot of our political work throughout the quarter, in addition to our Parliamentary work for Global MND Awareness Day

Ed Cooke: A tribute

We are saddened to learn of the death of our trustee, Ed Cooke, less than two years after his diagnosis of MND

Tofersen receives MHRA approval

The drug has now been granted marketing authorisation by the Medicines and Healthcare products Regulatory Agency (MHRA)

Political Snapshot - January to March 2025

A round up of the policy work the MND Association has been involved with in January, February and March 2025

MND Association’s Christmas dedication page lights up with special memories

Association launches a Christmas dedication page

BBC Lifeline Appeal success

The Motor Neurone Disease Association’s BBC Lifeline Appeal has raised £31,356

New report calls for better wheelchair services

The report, funded by Motability Foundation, was launched at the House of Lords in November.

Charity launches new cost calculator aimed at those living with MND

This tool aims to help families better understand the rising electricity costs associated with using essential medical and assistive equipment.

Drug closer to approval as MND Association hails Prescribe Life campaign success

Over 15,000 people signed the charity’s petition.

MND Association campaign urges NICE to ‘Prescribe Life’

People with MND have been at the heart of the Association's project from the very start.