Search results
- About MND
- Support and information
Tracy and Iain's views
Tracy is living with MND and her husband Iain is her main carer. They talk openly about their challenges with social care, communicating with eye gaze and…
- About MND
- Support and information
Meena's views
Meena, aged 47, is the main carer for her father who is living with MND. He was diagnosed in 2018. Meena talks about her care experience from a cultural point…
- About MND
- Support and information
Colin and Georgina's views
Colin is living with Kennedy’s disease and aged 72. His wife Georgina is his main carer. Colin self-diagnosed in 1998 as he was already aware of Kennedy’s…
- About MND
- Support and information
Sue's views
Sue is living with MND and aged 69. She was diagnosed in 2022 and talks about her experience living alone and the impact this has on managing her care.
- About MND
- Support and information
Ian and Deanne's views
Ian is living with MND and aged 70. He was diagnosed in 2024 and his wife Deanne is his main carer. They talk openly about the impact of MND as individuals and…
- About MND
- Support and information
David's views
Watch David share his experiences of living with motor neurone disease (MND), including diagnosis, healthcare, and daily life. Includes video clips and…
- Event
Organise a golf event
- Event
Host a quiz for MND
- About MND
What is Kennedy's disease?
Kennedy’s disease is also known as spinal bulbar muscular atrophy (SBMA) and is a rare disorder of the motor neurones, caused by a genetic mutation. If you are…
- About MND
- Support and information
Genetic testing
Part of MND Views. Some people with MND have an inherited form of the disease and Kennedy’s disease can be diagnosed through genetic testing. In these videos,…